This is Emillia's story as seen through our eyes...... Emillia was diagnosed with FPIES right before christmas of 2009 she was almost 10 months old. We have had our challenges, our ups and downs, numerous tears, and even some laughs through our experiences.
We have met some amazing people during these trialing times and we are very thankful for them and all that they have done for us!
Emillia is a very sweet vibrant little girl as you will learn reading through this blog. She is a trooper and always seems to have a smile on her face through even some of the hardest times.
Emillia has taught us many lessons in life already and i know she will continue to do so, she is our princess!

God grant us
the serenity to accept
the things we cannot change..........

Tuesday, November 2, 2010

Dental Surgery

   So I have not been looking forward to tomorrow for quite some time..... Emmy is scheduled to be put under for 2+ hours tomorrow morning while she has dental surgery done. She has to have all but 4 of her baby teeth capped. It frustrates me soooo much. I took her in about 4 months ago and the dentist said her teeth were fine, i told him about my concerns and he waved them off. 
   With Emmy's diet being so high in sugar/acid, lack of calcium in her diet and her vomiting we knew it would take its toll on her teeth, i tried staying ahead of it but again, NO ONE will listen to us. I fought to get her back in to be seen for quite some time and by the time i was finally able to get her back in it was too late. We brush her teeth 2-3 times a day which we thought was keeping us ahead of the game but sadly it wasn't. After seeing her dentist agin he informed me that he wants u s to brush her teeth now after every morsel of food and every sip of ANYTHING. He expects us to wake her up through out the night as she takes her formula and brush her teeth even then. He said he knows that'd make for a crabby child but it has to be done........
   Emmy has been put under 1 other time back last november before her diagnosis of FPIES for her scope, i keep telling myself she's been through it before but i know this time will be a lot longer.   They will be breathing for her fully and that scares me to death, when will she catch a break?  Ive thought about just not showing up but i know it has to be done, they are starting to hurt her we've noticed. I am sick to my stomach thinking about all of the what-ifs..... I hate having to watch her go through so much being so little, its not fair...... Defenately not a good day... I'm hoping she bounces back quick from the anesthesia like she did last time but i know this time is going to be longer and deeper. Her dentist has never delt with an FPIES child before so we have tons of notes in her file and i know that, yet i continue to worry. I know sleep won't come easily tonight if at all. She isnt able to eat after midnight and can only have clear liquids until 5am.... the drive is going to be horrible, she's going o be tired, hungry and very cranky. I feel so powerless right now and i hate that feeling, to be honest we havent had to deal with that feeling for a while now, and i will admit i don't miss that feeling.
   i'm worried how much pain she is going to be in and how badly its going to affect her eating habits for the next couple of days, we are finally getting her weight back up there and can't afford for her to loose any again yet. We've put any other food trials on hold until later next week- once she's had time to recover from her surgery. So much more on my mind yet no idea how to word it.....

1 comment:

  1. Sheree, I can emphatize with your powerless is it. Another mom put it in words (I did a blog about it): FPIES really stands for Feeling Powerless In Every Sense....sums it up doesn't it?
    Hope Emmy does well today, keep us posted.