This is Emillia's story as seen through our eyes...... Emillia was diagnosed with FPIES right before christmas of 2009 she was almost 10 months old. We have had our challenges, our ups and downs, numerous tears, and even some laughs through our experiences.
We have met some amazing people during these trialing times and we are very thankful for them and all that they have done for us!
Emillia is a very sweet vibrant little girl as you will learn reading through this blog. She is a trooper and always seems to have a smile on her face through even some of the hardest times.
Emillia has taught us many lessons in life already and i know she will continue to do so, she is our princess!

Emillia:
God grant us
the serenity to accept
the things we cannot change..........

Thursday, October 14, 2010

Episode #3............

To be honest with you i dont even rememeber what M reacted to her third episode, if i rememeber straight though i believe it was to turkey in the beginning of September. Same thing, middle of the night she wakes up after being restless and i know MY stomach started turning. Again the projectile vomiting was immediate, then came the lethargy, and the lifelessness. This episode she went downhill very fast. I rememeber the paramedics taking a little longer to get out here that time and i was standing outside with her, the cold seemed to perk her up a bit and when the paramedics arrived they looked at her and probably thought i was nuts, she was responsive and looking around, her vomiting had subsided. Once in the ambulance though she went back down hill. I had her taken to a different hospital this time hoping for some different answers......... That we didnt get, the ER doctor looked at her and told me she had the flu! As soon as i heard this i was about in tears..... no one would listen to me! When i was persistent that she needed IV's like the other 2 times before he pacified me and started iv's. He then wanted to do lab work and an x-ray on her and at this time it was already after 3am and she was worn out. She was laying in my arms whimpering. I remember asking the doctor what he would be looking for with the lab work and he told me an infection, i informed him that 2/3rds of her numbers were consistently off any day of the week-we didnt do any lab work that time. He then told me he wanted to do x-rays and again, i asked him what he was looking for and he mentioned her appendix.........."nope" i thought to myself and i flat out told him she wasnt getting x-rays she was too worn out. (i knew it wasn't her appendix)
               When i told the doctor i didnt want x-rays done on her he looked at me and said " That's probably a good thing, we wouldn't want to toast her little ovaries anyway.........." I will NEVER forget being told that, i was livid. M was sleeping at this time and i told the doctor i wanted release forms immediatly, that i was taking her home. As we waited for our ride home that night M and i slept in the waiting room of the hospital, i bawled...... 3 "episodes" and still no one would help us....they all wanted to re-run the same test but not do anything different for her......... The next morning i was on a mission, i started calling the Mayo Clinic every day for about a week in tears, telling them there was something wrong with my 7 month old and we couldnt get any answers.... i actualy remember begging them at one time to help me help her....... it was a long week.

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