This is Emillia's story as seen through our eyes...... Emillia was diagnosed with FPIES right before christmas of 2009 she was almost 10 months old. We have had our challenges, our ups and downs, numerous tears, and even some laughs through our experiences.
We have met some amazing people during these trialing times and we are very thankful for them and all that they have done for us!
Emillia is a very sweet vibrant little girl as you will learn reading through this blog. She is a trooper and always seems to have a smile on her face through even some of the hardest times.
Emillia has taught us many lessons in life already and i know she will continue to do so, she is our princess!

Emillia:
God grant us
the serenity to accept
the things we cannot change..........

Thursday, October 14, 2010

Tortilla shell and a 2 year old.......

I will take blame on this one, even though we didnt know what was going on with M yet, we tried to keep her away from any and all foods, there were 4 of us in our family that fed M otherwise we didnt allow anyone else to feed her........ I went to Brainerd with one of my sisters and her 9 yr old and 2 yr old. M was in between the two of them in the back of my car and we went through Taco Bell drive-through......... My 2 yr old niece was given part of a tortilla shell which had nothing on it........ In less than 15 min on our way back home M started getting fussy, I thought she was just tired......WRONG! M started projectile vomiting EVERYWHERE.... i knew she was having an "episode" because of the smell (when M has an episode her vomit has a very "tarnishy" scent to it, i throw out her oufits she was wearing during her episodes because i can never get the smell out of them no matter how many washes)
          We got to my sisters and took her inside, i sat with her in one of the bedrooms on the floor rocking her, i had to change her diaper/outfit more than 4 times in less than 30 minutes, she vomited MORE THAN 50 times in less than an hour that episode... I sat there hoping this episode would pass as i was holding her rag doll (limp) body in my arms, then i remember noticing the color of her skin start to get very pale. My sister and i loaded her back up in the car (i drove and my sister rode in the back with M) My heart dropped when my sis said the words "sissy, i dont want to scare you but we need to call 911, she's not responding........"  ( writting this i'm sitting here getting tears in my eyes, that was so hard to hear) We called 911 and they met us about 10 min from the hospital.... again though once she was in the fresh air she perked up a bit and was looking around... once in the ambulance however she went back down hill and if we hadnt been so close to the hospital they would have intubated her. That night in the ER we lucked out and got an amazing doctor, he had never seen anything like what was going on with M.  He told us he had no idea what was wrong with her but it was his top priority to get her vomiting to stop and that we needed to get her to a specialist..... We already had our appointment set up for the Mayo again for 2 weeks from that date..... He informed us to get her in sooner.....
              To this day i think that was her worst episode, it took her 3-4 days to get back to somewhat her "normal" self but she still layed low for numerous days after that........... It was nice though finally having another doctor closer to home willing to help us even though he had no idea what was wrong with her, he did mention cyclic vomiting but doubted it because her "episodes" happened after eating/being given certain foods.  Oh yeah, did i mention that M never even took a bite out of the tortilla shell..... not a single bite, she simply touched it to her lips................

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