This is Emillia's story as seen through our eyes...... Emillia was diagnosed with FPIES right before christmas of 2009 she was almost 10 months old. We have had our challenges, our ups and downs, numerous tears, and even some laughs through our experiences.
We have met some amazing people during these trialing times and we are very thankful for them and all that they have done for us!
Emillia is a very sweet vibrant little girl as you will learn reading through this blog. She is a trooper and always seems to have a smile on her face through even some of the hardest times.
Emillia has taught us many lessons in life already and i know she will continue to do so, she is our princess!

Emillia:
God grant us
the serenity to accept
the things we cannot change..........

Sunday, October 17, 2010

Grocery Shopping

        It's amazing how much you don't actually realize how much our lives/day revolves around food until your child has FPIES or a food allergy.............(or even you or a family member for that fact)  Jordan and i would always have so much fun grocery shopping, we don't go grocery shopping any more really, it's just not fun any more.... We took Emmy grocery shopping with us one time and she was so cute walking down the isles with us, she'd crouch down and look at an item and then give us such a big smile like "can i have this?!" we would tell her no and she'd shake her head and stand up and continue on. I didnt think it would bother me so much until about after the 10th time she did this and still she got the same "NO" as a response, she looked like she was ready to cry. She hung her sweet little head and walked over and grabbed her daddy's hand and walked next to him the rest of the time not even looking at the shelves any longer. That didnt even last another 5 minutes, i was in tears and we checked out and left. THAT broke my heart. I try not to take her to the store anymore if we need much for groceries, it seems like such an unfair thing to do, she knows she cant have what she sees, I however LOVE taking her to her specialty food store, we litterally spend a half an hour in there, she gets SO excited when we go to "her store."
     It amazes me how such small things can be so emotional when you have a child with such a rare syndrome, there was one day i walked into the grocery store to get Emmy her "safe foods" for the week and i started crying, its the same thing every time i go in- 12 sweet potatoes, 10 mangos, and strawberries or blueberries if they are fresh enough........ I bawled, i look at all of the other foods that would be fun to make for her and know it would be nothing but a punishment to give her....... Its gotten easier as the time has gone by but it is still hard some days.
    Before Emmy started solid foods she was able to have baby food mangos, sweet potatoes and apple sauce. I went in to get her baby food for the week and AGAIN i cried, i grabbed her mangos and they had switched them to "smoothie mangos" Gerber added rice as a filler... she could no longer have them. It seems silly to cry over food some might think but when your child is so limited on what they can have it is worth crying over some days if you ask me.........

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