Finally someone who would actually listen to us!

I rememeber the day when a nurse at the Mayo finally told me that we could set up our appointment...... it was like music to our ears!  We set up M's appointment but because of our insurance we needed a referral to be covered taking her that far from home. It took me 3 different doctors to get what we needed for our referral, but we finally got it! We headed to the Mayo middle of September. They ran every test possible on her, they tested her for childhood lukemia, blood disorder, tumors, auto-immune difficiency, EVERYTHING......I will never forget though when her specialist walked into our room that day and said to me after sitting down "Tell me what is going on with your daughter and what YOU think it could be." He talked to us for almost 2 hours about the possibilities of WHAT it could be, we went home after a week at the Mayo with still no answers but we felt like we were headed in the right direction. All of her test that time came back (-)  We scheduled another appoitment beginning of October and again more testing, again everything came back (-)................. We scheduled yet another appointment for November and sat back and waited. It had been almost 2 months since M had had her last episode................