This is Emillia's story as seen through our eyes...... Emillia was diagnosed with FPIES right before christmas of 2009 she was almost 10 months old. We have had our challenges, our ups and downs, numerous tears, and even some laughs through our experiences.
We have met some amazing people during these trialing times and we are very thankful for them and all that they have done for us!
Emillia is a very sweet vibrant little girl as you will learn reading through this blog. She is a trooper and always seems to have a smile on her face through even some of the hardest times.
Emillia has taught us many lessons in life already and i know she will continue to do so, she is our princess!
Emillia:
God grant us
the serenity to accept
the things we cannot change..........
We have met some amazing people during these trialing times and we are very thankful for them and all that they have done for us!
Emillia is a very sweet vibrant little girl as you will learn reading through this blog. She is a trooper and always seems to have a smile on her face through even some of the hardest times.
Emillia has taught us many lessons in life already and i know she will continue to do so, she is our princess!
Emillia:
God grant us
the serenity to accept
the things we cannot change..........
Sunday, October 17, 2010
New Food Trials
It has been almost 1 year since Emiilai has had a full blown FPIES reaction, i guess that happens when she isnt allowed to trial any new foods. Now that we have been given the ok to start trials again against quinoa (which passed) corn (gritts) quinoa pasta, venison, pork, spinach, tomatoes (sauce/ketchup) soy margarine, and olive oil it scares me to death. I try to not let it show but i know every time i introduce a new food we have a chance of her having a reaction and everything that goes with it. We can't seem to maintain her weight to save our lives. She's never been over 22 lbs and within the past 5 months has been down to 16lbs9oz. M gains an average of 1oz every 4 months. M still wears size 3-6/6-9 month bottoms and will soon be 20 months old, the doctors say she is the average size of a 9 month old. We trialed her quinoa but i deffinately lost sleep over it, every time she would sigh or roll over at night i was afraid she was going to start the vomiting.... her dad is terrified to trial anything with her when im not at home, we were supposed to start gritts today but he refuses to so i will start them with her tomorrow, fingers crossed. Its hard knowing what the little ones have to go through and i don't blame them for being leary against new foods, i would be as well if i were in their shoes. It still frustrates me some days knowing that what our bodies need to thrive and grow they can't have 90% of. I accept M's syndrome and try to learn new things about it every chance i have but it seems to confuse me the more i read knowing that no 2 FPIES child's diet is the same nor are thier reactions.......
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